A quick broderie anglaise tee

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I’ve got a few garments to share over the next few days/week, but I wanted to start this off with a shorter post about a top I made with leftover fabric, but also a health/Long Covid update (scroll down to the photos if you don’t care!).

Three months ago, after suffering with zero help for 18 months, I finally got a prescription for the first medication I could actually try. I’d already tried every supplement with even the slightest amount of medical research behind it (thanks, BSc in Genetics, for giving me the skills to read medical journals!), to absolute zero effect. In fact, I was getting steadily worse with zero medical help (sarcastic shocked pikachu face!). After suffering for a full year, I was finally extremely lucky enough to be referred to the only decent, research-led Long Covid clinic in the UK (at UCLH). They actually listened, did an extreme amount of blood tests, and after discovering that I “had lower T-Cells than most patients with full-blown AIDS”, referred me to a Clinical Immunologist, who investigated even further. He found additional things wrong with my immune system, but was at a loss to explain, let alone treat them, so I was left to try one medication: Low Dose Naltrexone (LDN).

As an aside, Naltrexone at high quantities is an opioid receptor blocker, used to treat addiction. But at low doses it acts as an immune modulator, affecting the calcium channels of NK T-Cells, and is off-label used to treat a wide range of auto-immune, post-viral, and immunocompromised issues. Anecdotally (because it’s only just being studied in trials for LC now), a third of LC patients who try it have zero effect, a third have a small improvement, and a third have a big improvement. This is as good as it gets in terms of LC treatments right now.

I’m current three months in, and I’ve seen a small but significant increase in energy (I’m talking going from a 30% baseline each day, to 40%). I AM IN NO WAY “CURED”, and frankly, I am hesistent to even post about this for people responding that it’s some miracle or something and making me feel 10x shittier when I have to explain that I am not. So please do not do this. I am not cured. I still cannot walk to the corner shop. I can only sit upright for an hour or two. But I’m waking up early, and actually feeling refreshed. I have only crashed once since I started it. I am actually awake in the evenings instead of lying collapsed on the sofa. And significantly for me, several opportunistic infections I’ve had for 9-12mo that have resisted all treatments are actually clearing up now.

I’m still hopeful that I might improve further, as some other patients have said that they didn’t feel a big difference until 4-6mo in. But even if I only peak at 40-50%, that’s still a small portion of life I can live that I couldn’t before.

Which means I’ve been able to do some more sewing!

After I sewed my recent Cashmerette Irving dress, I miraculously had nearly a meter of the black broderie anglaise jersey fabric leftover (it’s kinda insane I could squeeze a dress AND a tee out of only 2m?!), and frankly, it was taking up room in my fabric stash that I really wanted to gain back!

So I pulled out my FehrTrade Versatili-Tops Tee, reprinted in size XL, and made myself a breezy summer tee out of the leftover yardage!

This was an extremely straightforward sew – the Versatili-Tee is as quick to sew as a standard teeshirt, but with the side seams shifted to the back for some extra design flair. Unlike the dress version, I didn’t bother to line this as I knew I would want those little holes for summer ventilation, and I could just wear a beige bra underneath!

12 Comments

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  1. 4
    DeAnne

    Cheers for small improvements!
    I’m in awe of your fashion sense and sewing skills. Always enjoy your blog posts.

  2. 7
    Kelli

    That’s wonderful news!! Finally some improvement in the status quo even if it’s just a bit. Pisser that they don’t know why your T-cells are depleted and your immune system is so compromised but it’s a start! Fingers crossed that the LDN kicks in even more at the 4-6 month mark! Hurrah for the UCLH clinic!! Hope this little bit makes a big difference in your quality of life! Pulling for you!

  3. 8
    Marie-Christine

    Any improvement is very good news. Especially when it comes with a bit of an explanation, which gives you something more solid to start experimenting from. And we know you must be feeling better if you are sewing :-). Great shirt, good looking and perfect for all these awful heat waves

  4. 9
    Beads and Barnacles

    So good to hear about your little bit more energy, long may the upwards trajectory continue regardles of the rate. *crosses fingers that the long term trend continues up.

    This looks like such a useful top, I’m sure you will get loads of wear out of it. 🙂

  5. 10
    Maura

    Lovely fabric for the top – very elegant! Re health update: so glad you are having some improvement, however small it might be, and I hope it continues in that trend. Thanks for sharing about the drug – I had not heard of that use at all and find it very interesting (esp b/c I have a couple friends/relatives living with poorly understood autoimmune disorders).

  6. 11
    couchcrafts

    hiii i hear you on the caution on saying anything about your longcovid — people have so many things to say, and we also have to spend a lot of time trying to convince people how disabled we are. and any healing needs to be couched so carefully. you communicated VERY CLEARLY, great job 🙂

    i also take LDN and have found it helpful, and i’ve noticed that most folks with longcovid i know have had to be our own clinicians. (i was a clinician when i got sick and am still very unprepared for the kind of research involved…particularly because my LC has compromised my brain so much. you get it.) i’m glad you’ve found it useful — wishing you many low-symptom days and the ability to save up enough energy in order to continue in the general direction of ease!

    here in the US, all the LC clinics require in-person visits which is of course inaccessible for all the bedbound friends, and fairly inaccessible to me as a housebound person with a powerchair. and…they don’t tend to offer much besides validation that it’s not all in our heads or “laziness”, which is very valuable but insufficient.

    thanks for #sewnshownseated photo! my body is almost always a seated body and i love seeing how garments sew up/wear on a seated body. and how pockets fall, particularly, since it’s so helpful to have all my Things with me wherever i go (meds, notebook aka second brain, even all my chargers and a power bank..) but it’s uncomfortable to sit when pockets are full depending on where they fall. i’m working towards a sling bag for this purpose but anyway — just wanted to thank you and wish you well/good vibes.

    • 12
      melissa

      Thank you so much for this comment! I’m sorry you’re in the club none of us wants to be in, too. 🙁 I’m glad the #SewnShownSeated photos are helpful – I try to do them for all my photoshoots but sometimes I just forget (or run out of energy to find a good seated backdrop).

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